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Titolo:
Treatment demands and differential treatment of patients with cystic fibrosis and their siblings: patient, parent and sibling accounts
Autore:
Foster, C; Eiser, C; Oades, P; Sheldon, C; Tripp, J; Goldman, P; Rice, S; Trott, J;
Indirizzi:
Inst Canc Res, Dept Psychol Med, Sutton SM2 5PT, Surrey, England Inst CancRes Sutton Surrey England SM2 5PT tton SM2 5PT, Surrey, England Univ Sheffield, Dept Psychol, Sheffield S10 2TN, S Yorkshire, England UnivSheffield Sheffield S Yorkshire England S10 2TN S Yorkshire, England Royal Devon & Exeter Hosp, Dept Resp Med, Exeter EX2 5DW, Devon, England Royal Devon & Exeter Hosp Exeter Devon England EX2 5DW DW, Devon, England Royal Devon & Exeter Hosp, Dept Paediat, Exeter EX2 5DW, Devon, England Royal Devon & Exeter Hosp Exeter Devon England EX2 5DW DW, Devon, England
Titolo Testata:
CHILD CARE HEALTH AND DEVELOPMENT
fascicolo: 4, volume: 27, anno: 2001,
pagine: 349 - 364
SICI:
0305-1862(200107)27:4<349:TDADTO>2.0.ZU;2-L
Fonte:
ISI
Lingua:
ENG
Soggetto:
PSYCHOLOGICAL ADJUSTMENT; CHILDREN; MOTHERS; ADOLESCENTS; SYMPTOMS; BEHAVIOR; ILLNESS; DISEASE;
Keywords:
cystic fibrosis; siblings; differential treatment; adherence;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Social & Behavioral Sciences
Clinical Medicine
Citazioni:
27
Recensione:
Indirizzi per estratti:
Indirizzo: Foster, C Inst Canc Res, Dept Psychol Med, Sutton SM2 5PT, Surrey, EnglandInst Canc Res Sutton Surrey England SM2 5PT PT, Surrey, England
Citazione:
C. Foster et al., "Treatment demands and differential treatment of patients with cystic fibrosis and their siblings: patient, parent and sibling accounts", CHILD CAR H, 27(4), 2001, pp. 349-364

Abstract

Cystic fibrosis (CF) is a progressive disease with no known cure. Advancesin diagnosis and treatment have resulted in patients living longer and thus families live with the illness for longer. Treatments are becoming increasingly demanding and are largely performed in the family home. Mothers are often reported to experience greater stress and poorer adjustment than mothers of well children or population norms. Patients and siblings are also reported to display adjustment difficulties. Siblings have rarely been included in research designs. This qualitative study investigates the impact of CF and treatment on eight patients, eight mothers, one father and eight siblings. A family systems perspective was adopted. Each individual was interviewed independently using semistructured interviews. Patients and siblings were aged between 9 and 21 years. Qualitative analyses revealed high levels of non-adherence (intentional and unintentional) and parental involvement in treatment, minimal involvement of siblings, and preferential treatment towards patients. Demanding treatment, coupled with the progressive nature ofCF, promote high levels of parental involvement for younger children as well as older teenagers, often due to attempted or actual non-adherence. Siblings may receive less attention while patients' needs take priority. Futuredevelopment of a measure of adherence suitable for children and adolescents should take into account different motivations for non-adherence, particularly regarding the level of personal control over adherence to treatment. In addition, the potential impact of having a brother or sister with CF should not be underestimated and the needs of siblings should not go unnoticed.

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 05/07/20 alle ore 12:45:25