Catalogo Articoli (Spogli Riviste)

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Titolo:
Psychosocial responses of adolescent cystic fibrosis patients to lung transplantation
Autore:
Durst, CL; Horn, MV; MacLaughlin, EF; Bowman, CM; Starnes, VA; Woo, MS;
Indirizzi:
Childrens Hosp Los Angeles, Div Pediat Pulm, Cardiothorac Transplant PRogram, Los Angeles, CA 90027 USA Childrens Hosp Los Angeles Los Angeles CA USA 90027 Angeles, CA 90027 USA Childrens Hosp Los Angeles, Comprehens Cyst Fibrosis Ctr, Los Angeles, CA 90027 USA Childrens Hosp Los Angeles Los Angeles CA USA 90027 Angeles, CA 90027 USA Childrens Hosp Los Angeles, Keck USC Sch Med, Div Pediat Pulm, Cardiothorac Transplant Team, Los Angeles, CA 90027 USA Childrens Hosp Los Angeles Los Angeles CA USA 90027 Angeles, CA 90027 USA Childrens Hosp Los Angeles, Keck USC Sch Med, Div Pediat Pulm, Comprehens Cyst Fibrosis Ctr, Los Angeles, CA 90027 USA Childrens Hosp Los Angeles Los Angeles CA USA 90027 Angeles, CA 90027 USA Childrens Hosp Los Angeles, Keck USC Sch Med, Div Cardiothorac Surg & Cardiothorac Transplantat, Los Angeles, CA 90027 USA Childrens Hosp Los Angeles Los Angeles CA USA 90027 Angeles, CA 90027 USA
Titolo Testata:
PEDIATRIC TRANSPLANTATION
fascicolo: 1, volume: 5, anno: 2001,
pagine: 27 - 31
SICI:
1397-3142(200102)5:1<27:PROACF>2.0.ZU;2-Y
Fonte:
ISI
Lingua:
ENG
Soggetto:
PEDIATRIC HEART;
Keywords:
adolescent; cystic fibrosis pediatrics; lung transplantation; quality of life;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Clinical Medicine
Citazioni:
12
Recensione:
Indirizzi per estratti:
Indirizzo: Durst, CL Childrens Hosp Los Angeles, Div Pediat Pulm, Cardiothorac Transplant PRogram, 4650 Sunset Blvd,Mailstop 127, Los Angeles, CA 90027 USA Childrens Hosp Los Angeles 4650 Sunset Blvd,Mailstop 127 Los Angeles CA USA 90027
Citazione:
C.L. Durst et al., "Psychosocial responses of adolescent cystic fibrosis patients to lung transplantation", PEDIAT TRAN, 5(1), 2001, pp. 27-31

Abstract

What psychosocial issues do adolescent cystic fibrosis (CF) patients experience after undergoing lung transplantation (Tx)? The aim of this study wasto determine, using an ethnographic study design, the common themes and emotional responses in post-lung transplant adolescent CF patients of the Cardiothoracic Transplant Clinic at the Childrens Hospital Los Angeles. Nineteen CF lung transplant recipients were studied (eight males, 11 females: mean age at time of transplant, 15.7 +/- 2.7 yr). The mean time interval from Tx to interview was 25.4 months (range 1-58 months). Sixteen patients had living donor lobar lung Tx while three patients received cadaveric lungs. A series of 25 questions was used to assess the psychosocial impact of Tx, and a semistructured interview focused on the following five domains: lifestyle, family functioning, social functioning, body image, and psychological functioning. The major themes identified by patients included: a strong desire to set and attain meaningful long-range goals, the need to control as many aspects of their lives as possible while dealing with parental over-protectiveness, and the adjustment to a new lifestyle. Common emotional responses included manageable fear/anxiety of lung rejection and uncertainty of the future, impatience with disruptions of daily routines caused by post-transplant medical management and its effect on the attainment of set. goals, and frustration with parental over-protectiveness. In general, patients reported a positive outlook on life, with greater emphasis on sought-after goals as well as inter-personal relationships. This study demonstrates that adolescent CF transplant recipients develop long-term goals and plans for independence. By identifying and anticipating the emotional needs of this population, health care providers call assist patients in improving the quality of their lives from a physioiogical, as well as a psychological, viewpoint.

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 21/01/20 alle ore 07:04:13