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Titolo:
Using the Internet to pilot a questionnaire on childhood disability in Rett syndrome
Autore:
Fyfe, S; Leonard, H; Gelmi, R; Tassell, A; Strack, R;
Indirizzi:
Univ Western Australia, Ctr Child Hlth Res, TVW Telethon Inst Child Hlth Res, Perth, WA 6872, Australia Univ Western Australia Perth WA Australia 6872 Perth, WA 6872, Australia Curtin Univ Technol, Perth, WA 6001, Australia Curtin Univ Technol Perth WA Australia 6001 ol, Perth, WA 6001, Australia Disabil Serv Commiss, Perth, WA, Australia Disabil Serv Commiss Perth WA Australia rv Commiss, Perth, WA, Australia
Titolo Testata:
CHILD CARE HEALTH AND DEVELOPMENT
fascicolo: 6, volume: 27, anno: 2001,
pagine: 535 - 543
SICI:
0305-1862(200111)27:6<535:UTITPA>2.0.ZU;2-J
Fonte:
ISI
Lingua:
ENG
Soggetto:
MEDICAL INFORMATION; QUALITY;
Keywords:
Internet; online questionnaires; disability; childhood; Rett syndrome;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Social & Behavioral Sciences
Clinical Medicine
Citazioni:
18
Recensione:
Indirizzi per estratti:
Indirizzo: Leonard, H Univ Western Australia, Ctr Child Hlth Res, TVW Telethon Inst Child Hlth Res, POB 855, Perth, WA 6872, Australia Univ Western Australia POB 855 Perth WA Australia 6872 ustralia
Citazione:
S. Fyfe et al., "Using the Internet to pilot a questionnaire on childhood disability in Rett syndrome", CHILD CAR H, 27(6), 2001, pp. 535-543

Abstract

There is Increasing use of the Internet for the transfer and sharing of medical information. Opportunities to pilot surveys online are now also available. An online HTML questionnaire allowed us to pilot a questionnaire about functional ability and the use of health services in Rett syndrome, a rare neurological disorder. Subscribers to a list server completed the online questionnaire and returned data by CGI script-formatted e-mail. Text boxes were provided for open-ended questions. Eighty-six questionnaires were returned from 224 subscribers with 76% returned within the first week. Almost all respondents were Caucasian, well educated and English speaking. The issue of selection bias and the need for mechanisms to validate the diagnosis are important considerations in any research facilitated through the Internet. However, we were able to contact an otherwise inaccessible group in a fast and cost-efficient manner and effectively pilot our survey without tapping into our own study population.

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 17/02/20 alle ore 17:24:17