Catalogo Articoli (Spogli Riviste)

OPAC HELP

Titolo:
Patient-focused, family-centered end-of-life medical care: Views of the guidelines and bereaved family members
Autore:
Teno, JM; Casey, VA; Welch, LC; Edgman-Levitan, S;
Indirizzi:
Brown Univ, Ctr Gerontol & Hlth Care Res, Providence, RI 02912 USA Brown Univ Providence RI USA 02912 lth Care Res, Providence, RI 02912 USA Brown Univ, Dept Sociol, Providence, RI 02912 USA Brown Univ Providence RI USA 02912 Dept Sociol, Providence, RI 02912 USA Brown Univ, Sch Med, Dept Community Hlth, Providence, RI 02912 USA Brown Univ Providence RI USA 02912 mmunity Hlth, Providence, RI 02912 USA Picker Inst, Boston, MA USA Picker Inst Boston MA USAPicker Inst, Boston, MA USA
Titolo Testata:
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
fascicolo: 3, volume: 22, anno: 2001,
pagine: 738 - 751
SICI:
0885-3924(200109)22:3<738:PFEMCV>2.0.ZU;2-1
Fonte:
ISI
Lingua:
ENG
Soggetto:
MEASURING QUALITY; TERMINALLY ILL; GOOD DEATH; ILLNESS; PRINCIPLES;
Keywords:
dying; quality of care; guidelines;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Clinical Medicine
Life Sciences
Citazioni:
46
Recensione:
Indirizzi per estratti:
Indirizzo: Teno, JM Brown Univ, Ctr Gerontol & Hlth Care Res, 167 Angell St,Box G-HLL, Providence, RI 02912 USA Brown Univ 167 Angell St,Box G-HLL Providence RIUSA 02912 12 USA
Citazione:
J.M. Teno et al., "Patient-focused, family-centered end-of-life medical care: Views of the guidelines and bereaved family members", J PAIN SYMP, 22(3), 2001, pp. 738-751

Abstract

A fundamental barrier to improving the quality of medical care at the end of life is the lack of measurement tools. The Toolkit of Instruments to Measure End of Life Care (TIME) aims to fill that void by creating measurementtools that capture the patient and family perspective. To develop a conceptual model for a retrospective survey of bereaved family members that incorporates both professional and family perspectives on what constitutes good care at the end of life, a qualitative literature review of existing professional guidelines and six focus groups with bereaved family members from, acute care hospitals (n = 2), nursing homes (n = 2), and hospice/VNA home health services (n = 2) was performed. The focus groups were held in Arizona,New York, and Massachusetts and included 42 bereaved family members/friends contacted 3-12 months from the time of patients death. Domains of care that define quality end-of-life care were defined. Focus group participants defined high quality medical care as: 1) providing dying persons with desired physical comfort; 2) helping dying persons control decisions about medical care and daily routines; 3) relieving family members of the burden of being present at all times to advocate for their loved one; 4) educating family members so they felt confident to care for their loved ones at home, and 5) providing family members with emotional support both before and after the patient's death. The qualitative literature review yielded similar results, except that the professional guidelines did not mention the advocacy burden felt by families. These two sources provided the foundation for a conceptual model of patient-focused, family-centered medical care and a new toolfor surveying bereaved family members. Views of bereaved family members's-tories and professional guidelines help to identify key domains of quality of end-of-life care. A new survey instrument provides a way to in corporatethe perspectives of bereaved family members in measuring the quality of end-of-life care. (C) U.S. Cancer Pain Relief Committee, 2001.

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 21/09/20 alle ore 16:02:32