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Titolo:
The association between caregiver burden and caregiver health-related quality of life in Alzheimer disease
Autore:
Bell, CM; Araki, SS; Neumann, PJ;
Indirizzi:
Harvard Univ, Sch Publ Hlth, Ctr Risk Anal, Program Econ Evaluat Med Technol, Boston, MA 02115 USA Harvard Univ Boston MA USA 02115 valuat Med Technol, Boston, MA 02115 USA Univ Toronto, Inst Med Sci, Toronto, ON M5S 1A1, Canada Univ Toronto Toronto ON Canada M5S 1A1 d Sci, Toronto, ON M5S 1A1, Canada Univ Toronto, Dept Med, Toronto, ON M5S 1A1, Canada Univ Toronto Toronto ON Canada M5S 1A1 t Med, Toronto, ON M5S 1A1, Canada
Titolo Testata:
ALZHEIMER DISEASE & ASSOCIATED DISORDERS
fascicolo: 3, volume: 15, anno: 2001,
pagine: 129 - 136
SICI:
0893-0341(200107/09)15:3<129:TABCBA>2.0.ZU;2-L
Fonte:
ISI
Lingua:
ENG
Soggetto:
ACUTE LYMPHOBLASTIC-LEUKEMIA; BIRTH-WEIGHT CHILDREN; FAMILY CAREGIVERS; UTILITIES INDEX; COMPREHENSIVE ASSESSMENT; MENTAL IMPAIRMENT; CHILDHOOD-CANCER; SURVEY SF-36; OF-LIFE; DEMENTIA;
Keywords:
Alzheimer disease; caregiver burden; quality-adjusted life-year; cost-effectiveness analysis;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Clinical Medicine
Life Sciences
Citazioni:
51
Recensione:
Indirizzi per estratti:
Indirizzo: Bell, CM Sunnybrook & Womens Coll Hlth Sci Ctr, Clin Epidemiol Unit, 2075 Bayview Ave,G-157, Toronto, ON MYN 3M5, Canada Sunnybrook & Womens Coll Hlth Sci Ctr 2075 Bayview Ave,G-157 Toronto ON Canada MYN 3M5
Citazione:
C.M. Bell et al., "The association between caregiver burden and caregiver health-related quality of life in Alzheimer disease", ALZ DIS A D, 15(3), 2001, pp. 129-136

Abstract

The burden experienced by family caregivers of individuals with Alzheimer disease (AD) affects the caregivers' overall health-related quality of life(HRQOL). Assessing the influence on HRQOL is an integral part of determining the efficacy and economic attractiveness of interventions for AD. Generic preference-weighted instruments such as the Health Utilities Index Mark 2(HUI2) are recommended for measuring HRQOL for cost-effectiveness studies. However, these instruments focus on physical attributes and have not been tested in an AD caregiver population. We administered the HUI2 to a population of 679 caregivers to people with AD at 13 community and institutional sites in the United States. We also administered the Medical Outcomes Study 36-Item Short-Form Health Survey (SF-36), a caregiver time questionnaire, and a caregiver burden instrument. The mean global HUI2 utility score for caregivers was 0.87 and varied little by the affected person's setting of care and AD stage (range, 0.86-0.89; p > 0.2). The caregiver burden scales allvaried by the affected person's setting of care, and some also varied by disease severity. The mental health component summary score of the SF-36 forcaregivers varied across both disease stage and setting. Caregiver time increased for caregivers of AD-affected persons with more severe cognitive impairment. Generic preference-weighted instruments may not adequately capture differences in the burden of caregivers of those with AD. The developmentof condition-specific preference-weighted instruments may provide the means to better estimate HRQOL in AD caregivers.

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Documento generato il 27/09/20 alle ore 00:53:12