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Titolo:
The course of the terminal phase in patients with amyotrophic lateral sclerosis
Autore:
Neudert, C; Oliver, D; Wasner, M; Borasio, GD;
Indirizzi:
Univ Munich, Univ Hosp Grosshadern, Dept Neurol, D-81366 Munich, Germany Univ Munich Munich Germany D-81366 Dept Neurol, D-81366 Munich, Germany Univ Munich, Univ Hosp Grosshadern, Interdisciplinary Palliat Care Unit, D-81366 Munich, Germany Univ Munich Munich Germany D-81366 at Care Unit, D-81366 Munich, Germany Wisdom Hospice, Rochester, England Wisdom Hospice Rochester EnglandWisdom Hospice, Rochester, England Univ Kent, Kent Inst Med & Hlth Sci, Canterbury CT2 7NZ, Kent, England Univ Kent Canterbury Kent England CT2 7NZ nterbury CT2 7NZ, Kent, England
Titolo Testata:
JOURNAL OF NEUROLOGY
fascicolo: 7, volume: 248, anno: 2001,
pagine: 612 - 616
SICI:
0340-5354(200107)248:7<612:TCOTTP>2.0.ZU;2-K
Fonte:
ISI
Lingua:
ENG
Soggetto:
MOTOR-NEURON DISEASE; MECHANICAL VENTILATION; PALLIATIVE CARE; PERSPECTIVE;
Keywords:
amyotrophic lateral sclerosis; terminal phase; palliative care; death; choking;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Life Sciences
Citazioni:
26
Recensione:
Indirizzi per estratti:
Indirizzo: Borasio, GD Univ Munich, Univ Hosp Grosshadern, Dept Neurol, D-81366 Munich, Germany Univ Munich Munich Germany D-81366 , D-81366 Munich, Germany
Citazione:
C. Neudert et al., "The course of the terminal phase in patients with amyotrophic lateral sclerosis", J NEUROL, 248(7), 2001, pp. 612-616

Abstract

The fear of "choking to death" is on the mind of most patients suffering from amyotrophic lateral sclerosis (ALS). So far, however, there have been no systematic surveys concerning the dying phase in a general ALS population. We therefore performed a structured telephone interview with the relatives of 121 patients who died from ALS and were followed by the Motor Neuron Outpatient Clinic of the Department of Neurology, University of Munich, Germany. These data are compared with those obtained by a retrospective analysis of medical records of 50 ALS patients who were followed by the Wisdom Hospice, Rochester, UK. The data show that most ALS patients (Germany 88%, UK 98%) died peacefully, and no patient "choked to death". The symptoms most frequently reported for the last 24 hours were dyspnoea, coughing anxiety and restlessness. Around half (G 55%, UK 52%) of the patients died at home. The main palliative measures in place during the terminal phase were: home mechanical ventilation (G 21%, UK 0%), percutaneous endoscopic gastrostomy (G 27%, UK 14%), morphine (G 27%, UK 82%) and benzo diazepines (G 32%,UK 64%). The use of these palliative measures was judged to be beneficial by almost all relatives. These data support the hypothesis of a peaceful death process in ALS and should be communicated to patients and their relatives, at the latest after theonset of dyspnoea, to relieve unwarranted fears.

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 03/12/20 alle ore 20:46:54