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Titolo:
British consultant rheumatologists' perceptions about the hypermobility syndrome: a national survey
Autore:
Grahame, R; Bird, H;
Indirizzi:
Univ Coll London Hosp, Ctr Rheumatol, Hypermobil Clin, London W1P 9PG, England Univ Coll London Hosp London England W1P 9PG in, London W1P 9PG, England
Titolo Testata:
RHEUMATOLOGY
fascicolo: 5, volume: 40, anno: 2001,
pagine: 559 - 562
SICI:
1462-0324(200105)40:5<559:BCRPAT>2.0.ZU;2-B
Fonte:
ISI
Lingua:
ENG
Soggetto:
EHLERS-DANLOS-SYNDROME; JOINT HYPERMOBILITY; FIBROMYALGIA; FEATURES; POPULATION; DISORDERS; CRITERIA;
Keywords:
hypermobility syndrome; rheumatologists' perceptions; evidence-based medicine;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Clinical Medicine
Citazioni:
16
Recensione:
Indirizzi per estratti:
Indirizzo: Grahame, R Univ Coll London Hosp, Ctr Rheumatol, Hypermobil Clin, 40-50 Tottenham St,London W1P 9PG, England Univ Coll London Hosp 40-50 Tottenham StLondon England W1P 9PG
Citazione:
R. Grahame e H. Bird, "British consultant rheumatologists' perceptions about the hypermobility syndrome: a national survey", RHEUMATOLOG, 40(5), 2001, pp. 559-562

Abstract

Three hundred and nineteen UK-based consultant rheumatologists, members ofthe British Society for Rheumatology (a response rate of 76%), responded to a questionnaire concerning their perceptions of the (benign joint) hypermobility syndrome (HMS). The questions were wide-ranging and covered the nature of the condition, its clinic prevalence, criteria for diagnosis, the efficacy of chosen treatments, the impact of the syndrome on affected individuals and the contribution that it makes to the overall burden of rheumatic disease morbidity. Ninety-two per cent of the respondents believed in the HMS as a distinct clinical entity but only 39% accepted it as a distinct pathological entity. Only 42% were prepared to comment on whether the HMS and Ehlers-Danlos syndrome, hypermobility type (formerly EDS type III) were oneand the same entity. There was striking variability in estimated clinic prevalence and no consensus about the diagnostic criteria being used. There was little enthusiasm for treatments currently available. Nearly one-half ofthe respondents were sceptical about a significant impact of the HMS on people's lives and three-quarters about a significant contribution to the overall burden of rheumatic disease. There was little sign of awareness of findings in recent published studies. It seems unlikely, therefore, that evidence-based medicine is being practised in this area of rheumatology. An unexpected finding was a refreshing enthusiasm for joining regional interest groups on hypermobility (25% of all UK consultants expressed interest).

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 04/04/20 alle ore 14:54:37