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Titolo:
Between joy and sorrow: being a parent of a child with developmental disability
Autore:
Kearney, PM; Griffin, T;
Indirizzi:
Univ Western Sydney, Sch Nursing Family & Community Hlth, Penrith S DC, NSW 1797, Australia Univ Western Sydney Penrith S DC NSW Australia 1797 , NSW 1797, Australia Univ Sydney, Ctr Dev Disabil Studies, Sydney, NSW 2006, Australia Univ Sydney Sydney NSW Australia 2006 tudies, Sydney, NSW 2006, Australia
Titolo Testata:
JOURNAL OF ADVANCED NURSING
fascicolo: 5, volume: 34, anno: 2001,
pagine: 582 - 592
SICI:
0309-2402(200106)34:5<582:BJASBA>2.0.ZU;2-1
Fonte:
ISI
Lingua:
ENG
Soggetto:
FAMILIES; MOTHERS; STRESS; MODEL; ADJUSTMENT; INFANTS; PEOPLE;
Keywords:
disability; child; parents; joy; hope; denial; chronic sorrow; nursing; health professionals;
Tipo documento:
Review
Natura:
Periodico
Settore Disciplinare:
Social & Behavioral Sciences
Citazioni:
104
Recensione:
Indirizzi per estratti:
Indirizzo: Kearney, PM Univ Western Sydney, Sch Nursing Family & Community Hlth, Parramatta FR1-20, Penrith S DC, NSW 1797, Australia Univ Western Sydney Parramatta FR1-20 Penrith S DC NSW Australia 1797
Citazione:
P.M. Kearney e T. Griffin, "Between joy and sorrow: being a parent of a child with developmental disability", J ADV NURS, 34(5), 2001, pp. 582-592

Abstract

Aim. This study explored the experiences of parents who have children withsignificant developmental disability. Background. Prevailing societal and professional assumptions of parental crisis and maladjustment in response to the 'tragedy' of having a disabled child did not accord with the authors' practice experience. Whilst parents confronted numerous difficulties, most of them appeared to manage with optimism and remarkable resourcefulness. Research design. The study, using an interpretive methodology informed by phenomenology, intensively explored the experiences of six parents of children with significant developmental disability. Findings. Although they experienced much anguish and sorrow, the parents also spoke trf hops, love, strength and joy. interpretation of the parents' experiences revealed the themes of 'joy and sorrow,'hope and no hope' and 'defiance and despair', mediated by 'the tensions'Conclusions. This phenomenological interpretation provides insight and understanding into the parents' experiences and has implications for practice,education and research in nursing.

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 25/01/20 alle ore 15:40:41