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Titolo:
Assessing health status quality of life in ALS: Comparison of the SIP/ALS-19 with the ALS functional rating scale and the short form-12 health survey(TM)
Autore:
Bromberg, MB; Anderson, F; Davidson, M; Miller, RG;
Indirizzi:
Univ Utah, Dept Neurol, Salt Lake City, UT 84132 USA Univ Utah Salt Lake City UT USA 84132 eurol, Salt Lake City, UT 84132 USA Univ Massachusetts, Ctr Outcomes Res, Amherst, MA 01003 USA Univ Massachusetts Amherst MA USA 01003 tcomes Res, Amherst, MA 01003 USA Calif Pacific Med Ctr, Dept Neurol, Pacific Grove, CA USA Calif Pacific Med Ctr Pacific Grove CA USA Neurol, Pacific Grove, CA USA
Titolo Testata:
AMYOTROPHIC LATERAL SCLEROSIS AND OTHER MOTOR NEURON DISORDERS
fascicolo: 1, volume: 2, anno: 2001,
pagine: 31 - 37
SICI:
1466-0822(200103)2:1<31:AHSQOL>2.0.ZU;2-H
Fonte:
ISI
Lingua:
ENG
Soggetto:
SICKNESS IMPACT PROFILE; OF-LIFE;
Keywords:
amyotrophic lateral sclerosis; ALS; quality of life;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Clinical Medicine
Citazioni:
11
Recensione:
Indirizzi per estratti:
Indirizzo: Bromberg, MB Univ Utah, Dept Neurol, 50 N Med Dr, Salt Lake City, UT 84132USA Univ Utah 50 N Med Dr Salt Lake City UT USA 84132 T 84132 USA
Citazione:
M.B. Bromberg et al., "Assessing health status quality of life in ALS: Comparison of the SIP/ALS-19 with the ALS functional rating scale and the short form-12 health survey(TM)", AMYOTROPH L, 2(1), 2001, pp. 31-37

Abstract

BACKGROUND: The progressive loss of function affects the quality of life of the ALS patient. Quality of life depends on a spectrum of factors. Available instruments for assessment include questionnaires developed for genericillness-related disabilities and ALS-specific questionnaires that focus onfunction. METHODS: Comparisons were made between two ALS-specific questionnaires (ALS Functional Rating Scale and SIP/ALS-19) and a generic instrument (Short Form-12) given to 1513 patients from the (North American) ALS Patient Care Database. RESULTS: The SIP/ALS-19 correlates well with the ALS Functional Rating Scale and less well with the Short Form-12. CONCLUSIONS: The SIP/ALS-19 can be used as an effective surrogate for the ALS Functional Rating Scale, with the advantage that the SIP/ALS-19 also includes questions that encompass the psychological and social domains of quality of life.

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 22/01/20 alle ore 12:27:34