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Titolo:
Nondisclosure of human immunodeficiency virus and hepatitis C virus coinfection in a patient with hemophilia: Medical and ethical considerations
Autore:
Kulkarni, R; Scott-Emuakpor, AB; Brody, H; Weil, WB; Ragni, MV; Gera, R;
Indirizzi:
Michigan State Univ, Clin Ctr B220, Dept Pediat Human Dev, E Lansing, MI 48824 USA Michigan State Univ E Lansing MI USA 48824 n Dev, E Lansing, MI 48824 USA Michigan State Univ, Ctr Eth & Humanities, E Lansing, MI 48824 USA Michigan State Univ E Lansing MI USA 48824 ities, E Lansing, MI 48824 USA Univ Pittsburgh, Sch Med, Pittsburgh, PA USA Univ Pittsburgh Pittsburgh PA USA ittsburgh, Sch Med, Pittsburgh, PA USA
Titolo Testata:
JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY
fascicolo: 3, volume: 23, anno: 2001,
pagine: 153 - 158
SICI:
1077-4114(200103/04)23:3<153:NOHIVA>2.0.ZU;2-X
Fonte:
ISI
Lingua:
ENG
Soggetto:
LIVER-BIOPSY; CHILDREN; ADOLESCENTS; INFECTION; TRUTH;
Keywords:
HIV; HCV; coinfection; disclosure; ethics; autonomy; confidentiality;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Clinical Medicine
Citazioni:
20
Recensione:
Indirizzi per estratti:
Indirizzo: Kulkarni, R Michigan State Univ, Clin Ctr B220, Dept Pediat Human Dev, 138Serv Rd, E Lansing, MI 48824 USA Michigan State Univ 138 Serv Rd E LansingMI USA 48824 824 USA
Citazione:
R. Kulkarni et al., "Nondisclosure of human immunodeficiency virus and hepatitis C virus coinfection in a patient with hemophilia: Medical and ethical considerations", J PED H ONC, 23(3), 2001, pp. 153-158

Abstract

This article discusses a medical and ethical dilemma: whether to disclose a positive HIV (human immunodeficiency virus)/HCV (hepatitis C virus) coinfection to an adolescent boy without symptoms with hemophilia despite the objections of his parents. An actual case history is presented and the dilemma faced by the medical team is discussed. Numerous family conferences, all excluding the patient, held during the last 5 years discussed the medical tram's obligation for full disclosure, the emerging autonomy of the patient,and the potential for medical disaster (e.g., HIV transmission) if full disclosure were not permitted. Despite this, the family did not agree to allow disclosure. The patient and parents assured us of his sexual inactivity. Legal opinion was sought from the university counsel. The dilemmas are multiple. Is there a convincing argument to insist on disclosure of these factsto this patient, particularly when there is ambiguity regarding the appropriateness of HIV and HCV treatment? Does the ethical argument that he is atpotential risk for transmitting HIV/HCV outweigh the rights of the family? What are the rights of the rest of the family? What are the rights of the minor?! Is it our ethical responsibility to disclose a probably fatal diagnosis?

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 13/07/20 alle ore 06:02:00