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Titolo:
Predictive genetic testing for Huntington's chorea
Autore:
Retzlaff, R; Henningsen, P; Spranger, M; Janssen, B; Spranger, S;
Indirizzi:
Univ Heidelberg, Abt Psychosomat Kooperat Forsch & Familientherapi, Psychosomat Klin, D-69115 Heidelberg, Germany Univ Heidelberg Heidelberg Germany D-69115 , D-69115 Heidelberg, Germany Univ Klin Heidelberg, Neurol Klin, Heidelberg, Germany Univ Klin Heidelberg Heidelberg Germany eurol Klin, Heidelberg, Germany Univ Heidelberg, Inst Humangenet, Heidelberg, Germany Univ Heidelberg Heidelberg Germany Inst Humangenet, Heidelberg, Germany Univ Bremen, Inst Humangenet, Bremen, Germany Univ Bremen Bremen Germany niv Bremen, Inst Humangenet, Bremen, Germany
Titolo Testata:
PSYCHOTHERAPEUT
fascicolo: 1, volume: 46, anno: 2001,
pagine: 36 - 42
SICI:
0935-6185(200101)46:1<36:PGTFHC>2.0.ZU;2-J
Fonte:
ISI
Lingua:
GER
Soggetto:
DISEASE;
Keywords:
predictive genetic test; Huntington's disease; genetic counselling; medical family therapy;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Social & Behavioral Sciences
Citazioni:
19
Recensione:
Indirizzi per estratti:
Indirizzo: Retzlaff, R Univ Heidelberg, Abt Psychosomat Kooperat Forsch & Familientherapi, Psychosomat Klin, Bergheimer Str 54, D-69115 Heidelberg, Germany UnivHeidelberg Bergheimer Str 54 Heidelberg Germany D-69115
Citazione:
R. Retzlaff et al., "Predictive genetic testing for Huntington's chorea", PSYCHOTHERA, 46(1), 2001, pp. 36-42

Abstract

The development of predictive tests for genetic diseases such as Huntington's chorea, not only raises new ethical and psychosocial issues for people at risk for genetic diseases, but also poses a challenge for the professionals treating them. The number of patients facing these issues will grow considerably with future advances of the human genome project. While there is general agreement among geneticists and neurologists that concurrent psychosocial and psychotherapeutic counselling for patients considering getting tested should be a prerequisite for predictive test-ing, much less agreement exists in the field of psychotherapy on the form and content of psychotherapeutic counselling for patients with a genetic risk factor. By their very nature, hereditary genetic conditions are a family affair. Whatever the test result will be in the end, it will have repercussions on other family members. In consequence, this article argues in favor of a counselling approach that is family and resource oriented. From their experience with a collaborative treatment project, the authors present the major topics which psychotherapists need to address when working with patients at risk.

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 14/07/20 alle ore 07:04:14