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Titolo:
Health-related quality-of-life assessments in diverse population groups inthe United States
Autore:
Stewart, AL; Napoles-Springer, A;
Indirizzi:
Univ Calif San Francisco, Inst Hlth & Aging, San Francisco, CA 94143 USA Univ Calif San Francisco San Francisco CA USA 94143 ancisco, CA 94143 USA Ctr Aging Diverse Communities, San Francisco, CA USA Ctr Aging Diverse Communities San Francisco CA USA San Francisco, CA USA Med Effectiveness Res Ctr Diverse Populat, Dept Med, San Francisco, CA USAMed Effectiveness Res Ctr Diverse Populat San Francisco CA USA o, CA USA Univ Calif San Francisco, Div Gen Internal Med, San Francisco, CA 94143 USA Univ Calif San Francisco San Francisco CA USA 94143 ancisco, CA 94143 USA
Titolo Testata:
MEDICAL CARE
fascicolo: 9, volume: 38, anno: 2000, supplemento:, S
pagine: 102 - 124
SICI:
0025-7079(200009)38:9<102:HQAIDP>2.0.ZU;2-P
Fonte:
ISI
Lingua:
ENG
Soggetto:
CROSS-CULTURAL PSYCHOLOGY; CORONARY-ARTERY DISEASE; CES-D; MENTAL-HEALTH; METHODOLOGICAL ISSUES; MEXICAN-AMERICANS; HEART-DISEASE; OLDER ADULTS; MEASUREMENT INVARIANCE; RACIAL-DIFFERENCES;
Keywords:
race; ethnicity; socioeconomic status; age; gender; culture; measurement; psychometrics; questionnaires; health surveys;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Social & Behavioral Sciences
Clinical Medicine
Citazioni:
166
Recensione:
Indirizzi per estratti:
Indirizzo: Stewart, AL Univ Calif San Francisco, Inst Hlth & Aging, Box 0646, San Francisco, CA 94143 USA Univ Calif San Francisco Box 0646 San Francisco CA USA94143 A
Citazione:
A.L. Stewart e A. Napoles-Springer, "Health-related quality-of-life assessments in diverse population groups inthe United States", MED CARE, 38(9), 2000, pp. 102-124

Abstract

BACKGROUND. Effectiveness research needs to represent the increasing diversity of the United States. Health-related quality-of-life (HRQOL) measures are often included as secondary treatment outcomes. Because most HRQOL, measures were developed in nonminority, well-educated samples, we must determine whether such measures are conceptually and psychometrically equivalent in diverse subgroups. Without equivalence, overall findings and observed group differences may contain measurement bias. OBJECTIVES. The objectives of this work were to discuss the nature of diversity, importance of ensuring the adequacy of HRQOL measures in diverse groups, methods for assessing comparability of HRQOL, measures across groups, and methodological and analytical challenges. RESULTS. Integration of qualitative and quantitative methods is needed to achieve measurement adequacy in diverse groups, Little research explores conceptual equivalence across US subgroups; of the few studies of psychometric comparability, findings are inconsistent. Evidence is needed regarding whether current measures are comparable or need modifications to meet universality assumptions, and we need to determine the best methods for evaluatingthis. We recommend coordinated efforts to develop guidelines for assessingmeasurement adequacy across diverse subgroups, allocate resources for measurement studies in diverse populations, improve reporting of and access to measurement results by subgroups, and develop strategies for optimizing theuniversality of HRQOL measures and resolving inadequacies. CONCLUSIONS. We advocate culturally sensitive research that involves cultural subgroups throughout the research process. Because examining the cultural equivalence of HRQOL measures within the United States is somewhat new, we have a unique opportunity to shape the direction of this work through development and dissemination of appropriate methods.

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Documento generato il 23/11/20 alle ore 21:30:24