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Titolo:
DRAWING THE LINE - AN ANALYSIS OF LAY PEOPLES DISCUSSIONS ABOUT THE NEW GENETICS
Autore:
KERR A; CUNNINGHAMBURLEY S; AMOS A;
Indirizzi:
UNIV EDINBURGH,SCH MED,DEPT PUBL HLTH SCI,TEVIOT PL EDINBURGH EH8 9AGMIDLOTHIAN SCOTLAND
Titolo Testata:
Public understanding of science
fascicolo: 2, volume: 7, anno: 1998,
pagine: 113 - 133
SICI:
0963-6625(1998)7:2<113:DTL-AA>2.0.ZU;2-Y
Fonte:
ISI
Lingua:
ENG
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Physical, Chemical & Earth Sciences
Physical, Chemical & Earth Sciences
Arts & Humanities Citation Index
Citazioni:
12
Recensione:
Indirizzi per estratti:
Citazione:
A. Kerr et al., "DRAWING THE LINE - AN ANALYSIS OF LAY PEOPLES DISCUSSIONS ABOUT THE NEW GENETICS", Public understanding of science, 7(2), 1998, pp. 113-133

Abstract

''Where do we draw the line?'' is a question that is frequently askedin discussions about the new genetics. In this paper we explore a range of lay people's accounts of drawing the line. We show that, beyond its rhetorical function, answering this question involves important discussions about genetic research, testing, regulation, and social provision for people who are sick or disabled. It raises difficult questions about clients' and service providers' autonomy and responsibility and about which human illnesses, conditions, and characteristics ought to be the subject of research and testing. In particular, we show how differences in the amount and type of information and advice availableto clients of genetic testing, the level of social support to people with particular conditions, and people's perception of stigma suffering, and quality of life, make drawing the line highly problematic. We end by discussing the implications of our analysis for policy making, considering how the ambiguities and tensions in lay accounts might enable, as opposed to stifle, greater democratization of the new genetics.

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 24/10/20 alle ore 07:45:47