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Titolo:
Breaking the news in amyotrophic lateral sclerosis
Autore:
Borasio, GD; Sloan, R; Pongratz, DE;
Indirizzi:
Univ Munich, Klinikum Grosshadern, Dept Neurol, D-81366 Munich, Germany Univ Munich Munich Germany D-81366 Dept Neurol, D-81366 Munich, Germany Joseph Weld Hospice, Dorchester DT1 2SL, Dorset, England Joseph Weld Hospice Dorchester Dorset England DT1 2SL SL, Dorset, England Univ Munich, Friedrich Baur Inst, D-80336 Munich, Germany Univ Munich Munich Germany D-80336 ch Baur Inst, D-80336 Munich, Germany
Titolo Testata:
JOURNAL OF THE NEUROLOGICAL SCIENCES
, volume: 160, anno: 1998, supplemento:, 1
pagine: S127 - S133
SICI:
0022-510X(199810)160:<S127:BTNIAL>2.0.ZU;2-G
Fonte:
ISI
Lingua:
ENG
Soggetto:
POSITIVE-PRESSURE VENTILATION; MOTOR-NEURON DISEASE; BAD-NEWS; DIAGNOSIS; CANCER; SKILLS;
Keywords:
bad news; communication skills; motor neurone disease; palliative care; telling the diagnosis;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Life Sciences
Citazioni:
30
Recensione:
Indirizzi per estratti:
Indirizzo: Borasio, GD UnivMunich,, Klinikum Grosshadern, Dept Neurol, Marchioninistr15, D-81366 Univ Munich Marchioninistr 15 Munich Germany D-81366 D-81366
Citazione:
G.D. Borasio et al., "Breaking the news in amyotrophic lateral sclerosis", J NEUR SCI, 160, 1998, pp. S127-S133

Abstract

Telling the diagnosis to patients with amyotrophic lateral sclerosis (ALS)is a daunting task for any neurologist. Obviously, breaking the news in ALS is not a standardizable procedure. However, proven techniques exist to reduce the trauma to the patient and ease the burden on the doctor, thus reducing the risk of burnout and the tendency to 'pull away' from the patient. Such communication skills are of fundamental importance to clinical practice and should be more prominent in medical teaching. The way the patient is told the diagnosis is now recognized to be the first and one of the most delicate steps in palliative care. Information is best offered in a stepwise fashion at the patient's pace with an emphasis on positive aspects, and in the presence of the patient's family. Reviewing available therapeutic options and current research efforts may foster hope for the future, while pointing out that almost all symptoms of ALS can be alleviated by palliative therapy may help to reduce fears. Encouraging patients to ask questions and disclose anxieties is important for their psychological wellbeing. Available options for mechanical ventilation should be reviewed early enough to allowfor unhurried decision-making. We believe that the terminal phase of the disease should be discussed at the latest when dyspneic symptoms appear, in order to prevent unwarranted fears of 'choking to death'. (C) 1998 ElsevierScience B.V. All rights reserved.

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 29/09/20 alle ore 04:23:54