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Titolo:
EXPERIENCES AND ATTITUDES CONCERNING GENETIC TESTING AND INSURANCE INA COLORADO POPULATION - A SURVEY OF FAMILIES DIAGNOSED WITH FRAGILE-XSYNDROME
Autore:
WINGROVE EJ; NORRIS J; BARTON PL; HAGERMAN R;
Indirizzi:
7575 E ARKANSAS AVE,13-103 DENVER CO 80231 KAISER FDN HLTH PLAN DENVER CO 00000 CHILDRENS HOSP,CHILD DEV CTR DENVER CO 80218 UNIV COLORADO,HLTH SCI CTR,GRAD SCH PUBL HLTH DENVER CO 00000
Titolo Testata:
American journal of medical genetics
fascicolo: 2, volume: 64, anno: 1996,
pagine: 378 - 381
SICI:
0148-7299(1996)64:2<378:EAACGT>2.0.ZU;2-4
Fonte:
ISI
Lingua:
ENG
Soggetto:
HUMAN GENOME PROJECT; LIFE-INSURANCE;
Keywords:
GENETIC DISCRIMINATION; GENETIC COUNSELING; HEALTH INSURANCE; FRAGILE X SYNDROME; UNDERWRITING;
Tipo documento:
Article
Natura:
Periodico
Settore Disciplinare:
Science Citation Index Expanded
Citazioni:
7
Recensione:
Indirizzi per estratti:
Citazione:
E.J. Wingrove et al., "EXPERIENCES AND ATTITUDES CONCERNING GENETIC TESTING AND INSURANCE INA COLORADO POPULATION - A SURVEY OF FAMILIES DIAGNOSED WITH FRAGILE-XSYNDROME", American journal of medical genetics, 64(2), 1996, pp. 378-381

Abstract

This study examined the relationship between diagnosis, experience with insurance underwriting, and percept-ions of difficulties with insurance in genetically tested families. Discrimination was strictly defined as the misuse of genetic information in underwriting, Forty-eight families received a survey and thirty-nine (81%) responded, No insurance cancellations were reported although many families believed that it happened often. The fear evidenced by the respondents was out of proportion to the experiences and 66% of the families reported moderate to extreme worry over losing health insurance. Genetic counselors and others involved in caretaking of diagnosed families must expand their roles to assist in providing access to local resources and information concerning insurance issues and other social issues. Addressing medical issues alone will not provide the assistance these families require. (C) 1996 Wiley-Liss, Inc.

ASDD Area Sistemi Dipartimentali e Documentali, Università di Bologna, Catalogo delle riviste ed altri periodici
Documento generato il 02/10/20 alle ore 00:27:42